The single most frustrating thing about all of this is that I can't plan anything in advance. I don't know when my treatment will start so I don't know if I'll be on a treatment or recovery week.
So, for example the teen tells me that "Heathers is going on tour soon" - I can't commit until I know how I react to the treatment, so it's a "you're going to have to tell your dad" moment.
I had a look at the Annie dates on tour, so far we can get reasonably priced tickets and we want to see Craig Revel Horwood as Miss Hannigan (as we haven't seen him in the role yet, just lots of other people) - but yet again I can't book - though there are two or three options here which aren't too far.
Uuuhhhhhh!
Fortunately, Come From Away is on tour next year so I'm not thinking about it at all. Plus there aren't any dates announced yet.
I want to go back to watching football matches (Spurs Women of course) - I'm not quite in the headspace to go now but when things get warmer if dates match up then I definitely want to try.
I want to do what would have been normal before all this happened, I know my limits and I know I can't just book and go - it's annoying.
I get the feeling my platelet levels still aren't playing ball. I got slightly annoyed the hospital wrote to the GP and said my throat had swelled up with my new antibiotics allergy (as it didn't, at all and it's guesswork by them as nobody tested me for it). BUT this means that chemo won't start until it does. It's annoying.
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