Every Tuesday I've cut back by 0.5mg of the steroid I'm taking - and one of its side effects is making your leg muscles feel as I've described above.
This week I'm down to 0.5mg, the lowest I've been on since all this started. Last night I went up to bed and made it upstairs like I used to - there was no heavy feeling in my legs. It felt normal - pre-tumour normal. I got to the top of the stairs and felt like things were how they used to be.
If things go back to how they were (which is possible), I'm glad that I could feel 'normal' again so quickly on a lower dose of steroid - that makes me wonder how much my blood sugars could be affected too.
I've described this as being like the triangle with taking photos* - you change one bit of medication and the other two parts need to be looked at as well so things don't get really wonky.
I know this is a positive thing overall but doesn't really change anything, I'm taking the positives though, it's a good mental health thing.
*technical term there
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