Glioblastoma Chronicles

I can't stop eating chocolate. It's like a weird addiction, I see the biscuit, the biscuit has to be eaten by me. So it is and oh GO...

If I could get a good photograph of the tips of my fingers I would, but I don't think the lighting works in my favour.  On almost all my...

My head is so tired. There, I've said it. I think this is a hangover from our trip to York and everything that came with it - which was ...

The end of my nose is cold. This isn't a new thing, it's one of those things I have forgotten to mention here. Last night I insisted...

I'm definitely feeling the tiredness a lot more at the moment. I'm not sure if it's the colder weather and me snuggling under bl...

I think it may have finally happened. I am getting so many appointment letters, so many alerts on the app, so many texts asking me to book a...

I vowed if I was near the laptop and hungry I'd blog, so here I am. I'm SO hungry. I had my usual lunch, I've had a mid-afternoo...

So here we are, another week begins. It's Monday and I have my 'list of things' to do this week (which take forever to get done ...

Let's keep this short. Straight after the operation I was a bit incontinent. Most of the time I'd get to the loo with time to spare....

Yesterday I had my fortnightly call with the neuro team to see where we are with my various pills and things I need to take.  As I'm man...

Ugh. I have been reliably informed by my nearest and dearest that I can sound "a bit rude". So : context. I have had tinnitus sinc...

Oh sadness. Went to the beach today, I managed just over an hour of lying in a tent before I realised I had to get back to the car which whe...

This is something I've noticed more of late. My smile is a bit strange at times. Not noticeably so, but enough that if you know, you spo...

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...

I was back at the hospital this week. What was going to be a three appointment visit ended up being an epic six appointment one instead - in...

I'm back at the hospital next week, and they want to check out my cough. It might be nothing or it might be something. The most extreme ...

I have moments, moments where it all comes back and the enormity of all this rests itself on my shoulders. Just reminding me that it hasn...

I like how when we get an extra day off, a bank holiday it's classed as a long weekend. It also means I have no radiotherapy on Monday b...

Oh my word, did the nausea make an appearance. No sickness, just feeling nauseous.  But it's affecting what I eat (again). So I guess th...

There's a great* article about Michael J Fox in The Guardian. He talks about his Parkinsons diagnosis and how he won't live to 80. T...