Glioblastoma Chronicles

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Tuesday, January 31, 2023

Steroid Reduction

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This morning I've had my first steroid reduction, down from 2mg to 1.5mg. This is going to be a long, slow, gradual reduction as if you ...
Monday, January 30, 2023

Holding Pattern

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The MRI scan results from last week weren't completely in, just partly in. So we don't have all the answers, we have some.  Plus we ...
Sunday, January 29, 2023

God

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I am not religious in the slightest. I can go into a church and it can take my breath away, though any connection to God is unlikely.  What ...
Friday, January 27, 2023

Was There a Party?

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Oh don't mind me, it's another "did this happen?" moment. I know this memory happened when I was on the ward at St Helier,...
Thursday, January 26, 2023

Missing Life

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Here's something I hadn't thought about when all this started. The teen is hitting her GCSE choices at school - so there are meeting...
Wednesday, January 25, 2023

Antihistamine Reduction

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I've reduced my antihistamine tablets to one per day (in the evening) and things seem to be okay  I still get a rash on my legs though i...
Tuesday, January 24, 2023

MRI aye aye

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This morning was my follow up MRI where they'll compare the before and after scans. I'm not sure when 'before' actually is, ...
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