Glioblastoma Chronicles

Yeah yeah, the f-word again. Sorry.  I'm forgetting a lot at the moment but am being told not to worry and just focus on my steroid redu...

I can't stop eating chocolate. It's like a weird addiction, I see the biscuit, the biscuit has to be eaten by me. So it is and oh GO...

The end of my nose is cold. This isn't a new thing, it's one of those things I have forgotten to mention here. Last night I insisted...

Shall we? Skin - generally okay, though I can see where new hairs are growing how it pushes a kind of small spot-like bit of skin out, givin...

I vowed if I was near the laptop and hungry I'd blog, so here I am. I'm SO hungry. I had my usual lunch, I've had a mid-afternoo...

Let's keep this short. Straight after the operation I was a bit incontinent. Most of the time I'd get to the loo with time to spare....

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...

I was back at the hospital this week. What was going to be a three appointment visit ended up being an epic six appointment one instead - in...

Today we went to Mayfield Lavender. Our local massive lavender field with three different types growing. The calming scent of the lavender w...

Well that's a turn up for the books - I can stop taking steroids without weaning. I took 4mg which went down to 2mg, and only two weeks ...

This one is an odd one. When everything started and all manner of drugs were being prescribed to me, one of them was dexamethasone - a stero...

Here I am after another Monday at the hospital. Today was a bit different to the usual - aside from the waiting involved. We arrived at the ...

BTW, decreasing to 1.5mg last week was fine, so I've decreased to 1mg this week. No headaches in the last week, I'm hoping for the s...

Firstly, I'm not worried about it. I can see that dry skin is a common side effect when you stop chemotherapy and radiotherapy.  Up to n...

This morning I've had my first steroid reduction, down from 2mg to 1.5mg. This is going to be a long, slow, gradual reduction as if you ...