Glioblastoma Chronicles

can I mention how confused I am again? Only Connect, Mastermind, University Challenge. All quizzy Monday programmes ON A THURSDAY. Husband a...

Should I do a little catch up on everything? Let's try.... I'm very tired. We know this, I keep going on about it. Lots of afternoon...

Phew. What a horrible night last night.  I appear to have caught something. I'm unsure what but I managed to be very very sick last nigh...

So here we are, another week begins. It's Monday and I have my 'list of things' to do this week (which take forever to get done ...

The dandruff-style effect of my dry skin is back. Every time I move clothes which are touching the dry flakes it's like a mini snowglobe...

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...

I've always been aware that hairloss would be something I'd experience. 2023 has been the year of the hairloss, most definitely.  I ...

So we were back at the hospital today to discuss the results of my MRI from last week. Plus talking about chemo, the side effects and the ne...

One thing that bugs me a lot, when other people describe someone who has been diagnosed with cancer, they'll tend to refer to it as  ...

So after hating my now-healed hands, the dryness has spread to my feet.  Cracked palms vs cracked soles, the feet lose big time. So off to t...

Last night I was awake until gone 2am as guess what? My skin was really itchy - all over.  I am putting it down to taking a drowsy antihista...

Went in for my April appointment today, where things are now different within the hospital. I had been given a bloods appointment but knew t...

Oh my word. The itching. It was a whole new level of torture under my skin with no creams stopping it, just giving me a break until tirednes...

Oh, so here's a good one - some good news at last. My hairloss has really slowed down - I'm not getting as much hair coming off on m...

I just checked, a normal, full skin cycle is 28 days. I know this isn't the case for my weird skin at the moment though.  Currently I ha...

I appear to have lost a lot of hair suddenly. I was expecting something to happen but not as much at once. I've been washing my hair (wh...

This blog started out as somewhere to keep notes, but I think is lacking coherent content. So until my brain forgets what I'm writing ab...

So earlier on here I wrote " Health-wise I had a headache, a very low-grade one which was there all day. I mentioned it yesterday at th...

Oh. Interesting. I forgot my evening antihistamine last night - the only one I take these days. This morning I had no flaky skin. No "h...