Glioblastoma Chronicles

can I mention how confused I am again? Only Connect, Mastermind, University Challenge. All quizzy Monday programmes ON A THURSDAY. Husband a...

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...

So that electric shock feeling that I got on my body (which I'm still putting down to chemo) has come back. It's a 1/10 level, easil...

Of course I posted about my head of hair and the lack of hairloss, with it being swiftly followed by my hair falling out. I had a nap this ...

This one is an odd one. When everything started and all manner of drugs were being prescribed to me, one of them was dexamethasone - a stero...

I have done hair-on-the-head updates but not elsewhere. So here's a brief elsewhere. Underarms - this hair still hasn't grown back p...

I like how when we get an extra day off, a bank holiday it's classed as a long weekend. It also means I have no radiotherapy on Monday b...

The thing I like the most about Radiotherapy is seeing the scans that they use, and today I had more things explained to me.  So the tumour ...

Oh my word, did the nausea make an appearance. No sickness, just feeling nauseous.  But it's affecting what I eat (again). So I guess th...

So tomorrow as well as continuing with radiotherapy (which is kind of weird as the laser/zapper is at a different angle), I have my first De...

Radiotherapy will recommence soon. I've had my mask fitting so things should move quickly which is good news.  Having my mask fitting a ...

I've always been aware that hairloss would be something I'd experience. 2023 has been the year of the hairloss, most definitely.  I ...

Disclaimer - I am not picking out any individuals - just writing what has happened. Please don't take offence.  Back in the radiotherapy...

Oh, so here's a good one - some good news at last. My hairloss has really slowed down - I'm not getting as much hair coming off on m...

Firstly, I'm not worried about it. I can see that dry skin is a common side effect when you stop chemotherapy and radiotherapy.  Up to n...

This morning I've had my first steroid reduction, down from 2mg to 1.5mg. This is going to be a long, slow, gradual reduction as if you ...

The MRI scan results from last week weren't completely in, just partly in. So we don't have all the answers, we have some.  Plus we ...

I guess this journey into the unknown was due to bring up all kinds of oddities along the way as the toxic medicine makes its way out of my ...

 I've been meaning to do a post about this. Do feel free to skip by as it's more for my records than anything else.  The side effect...

Maybe it's because I'm well into the flow of hospital appointments and amazing friends (and family) taking me there, so I have other...