Glioblastoma Chronicles

Today's "uuurghhh" moment is my face swelling up. Under my eyes - I think my days of using the MooGoo eczema cream may have to...

We all got a bit lost in translation yesterday. Fortunately it wasn't a pain for us (probably moreso for husband as he was working) - we...

Here I am after another Monday at the hospital. Today was a bit different to the usual - aside from the waiting involved. We arrived at the ...

Every other advert on tv is a cancer-related funeral care one.  Every other advert on tv is a bank. They'd love you to leave some money ...

Okay, forgetfulness is well and truly back. My short term memory isn't great. Longer term is - though it's a bit weird. For example,...

It has taken over three months but I've finally caught a cold. My voice is croaky and deep, I have an annoying cough. I was up quite a f...

Still not high enough. I knew this though, I'm happy as my levels were higher. Let's get to the next appointment and see what happen...

The single most frustrating thing about all of this is that I can't plan anything in advance. I don't know when my treatment will st...

I always get answers when I'm face to face with my consultant who knows I have a need for information so I can process all of this. So i...

I guess a check-in is due on this - though it's better news than previous updates.  Hairloss. Still losing hair though it feels like it...

Okay, so here's my next question. I've been thinking about it way too much. As I've gone on about for the last few weeks, hospit...

This morning I've had my first steroid reduction, down from 2mg to 1.5mg. This is going to be a long, slow, gradual reduction as if you ...

The MRI scan results from last week weren't completely in, just partly in. So we don't have all the answers, we have some.  Plus we ...

I've reduced my antihistamine tablets to one per day (in the evening) and things seem to be okay  I still get a rash on my legs though i...