Glioblastoma Chronicles

I'm trying to organise my non-brain-tumour time accordingly, ensuring I'm doing good stuff. So that's things like eating. drinki...

I have a lot of posts in draft at the mo, this is the latest one. My problem is that I can never remember what I was going to waffle on abou...

Yeah yeah, the f-word again. Sorry.  I'm forgetting a lot at the moment but am being told not to worry and just focus on my steroid redu...

Ok, let's get on with it.  Legs - like lead weights at times, difficult to walk upstairs. I manage but it's tiring.  Skin - it's...

If I could get a good photograph of the tips of my fingers I would, but I don't think the lighting works in my favour.  On almost all my...

Tonight is another night out at the theatre. I can't wait! Although I have a horrible feeling we're in similar seats to the last tim...

The end of my nose is cold. This isn't a new thing, it's one of those things I have forgotten to mention here. Last night I insisted...

Things are going well. I currently have four or five hospitals/medical establishments which are issuing prescriptions to me. I've comple...

So we're all more than aware how little my head retains. It's irritating, especially when the teen and husband tell me about a conve...

Ha, see, if I call each post the actual day it's published, maybe that will help me.  Though right now my biggest problem is that I thin...

 "GASP! Will we get to use your Blue Badge?!" excitedly asked the teen. I told her it was unlikely as there were plenty of parking...

So for goodness knows how long (we're talking years here) dirty clothes end up on the floor, screwed up in a ball which clearly indicate...

So of course I checked in with one of my neuro nurses to make sure I hadn't missed any appointments. Except every single appointment was...

Here's one that I keep meaning to type up, maybe I already have. Who knows? Anyway.... loneliness.  It's a weird one. I quite enjoy ...

Yesterday I had my fortnightly call with the neuro team to see where we are with my various pills and things I need to take.  As I'm man...

I'm really good at this. Say you'll do something and it doesn't quite get done. It sort of does, but there's nobody else to...

Flip. It's happened again. I had something to write about and now I'm here I've forgotten what it was. This is normal behaviour ...

"blah blah blah raw halloumi" said (probably) husband "Raw Halloumi?!" I exclaimed, confused straight away. "How ca...

This is something I've noticed more of late. My smile is a bit strange at times. Not noticeably so, but enough that if you know, you spo...

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...