Glioblastoma Chronicles

The first rule of anything is don't do anything. You might find something you didn't want to read. Then you want to make sure everyo...

I re-read my discharge letter from the Royal Marsden. It's quite bleak.  This happens a lot, I read something but then go back to it and...

Ok, let's get on with it.  Legs - like lead weights at times, difficult to walk upstairs. I manage but it's tiring.  Skin - it's...

If I could get a good photograph of the tips of my fingers I would, but I don't think the lighting works in my favour.  On almost all my...

The end of my nose is cold. This isn't a new thing, it's one of those things I have forgotten to mention here. Last night I insisted...

I vowed if I was near the laptop and hungry I'd blog, so here I am. I'm SO hungry. I had my usual lunch, I've had a mid-afternoo...

Let's keep this short. Straight after the operation I was a bit incontinent. Most of the time I'd get to the loo with time to spare....

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...

There I was sitting on my phone when my hospital app alerted me to a phone appointment which was starting in 30 minutes. It was new, I knew ...

So here I am, no longer updating daily like I was. Mainly as my repetition is quite obvious when I post things, but also there's nothing...

I was back at the hospital this week. What was going to be a three appointment visit ended up being an epic six appointment one instead - in...

So the world of weird has re/appeared these last two days. In my head I'm staying indoors today because I'm due a delivery from Nesp...

Well that's a turn up for the books - I can stop taking steroids without weaning. I took 4mg which went down to 2mg, and only two weeks ...

This one is an odd one. When everything started and all manner of drugs were being prescribed to me, one of them was dexamethasone - a stero...

Seriously. This hunger is too much. Husband reckons it's steroid related, I'm not so sure. Other than right now I need a giant bag o...

My hunger issues appear to be over. However, in place of this is the need to be eating all the time, ever. Right now I want Pringles. It is ...

I had my phone call with the diabetic doctor today. It was an interesting call - mainly as I got a lot of answers to questions I hadn't ...

So we were back at the hospital today to discuss the results of my MRI from last week. Plus talking about chemo, the side effects and the ne...

Had a phone call with the Diabetic Doctor this morning to talk about lowering my Insulin I take every day.  The only reason I started Insuli...