Glioblastoma Chronicles

can I mention how confused I am again? Only Connect, Mastermind, University Challenge. All quizzy Monday programmes ON A THURSDAY. Husband a...

Should I do a little catch up on everything? Let's try.... I'm very tired. We know this, I keep going on about it. Lots of afternoon...

My GP doctor visited today, she's great. Lots of long cancer-esque conversations, no conclusions but lots of options. Before that the Ra...

I re-read my discharge letter from the Royal Marsden. It's quite bleak.  This happens a lot, I read something but then go back to it and...

Phew. What a horrible night last night.  I appear to have caught something. I'm unsure what but I managed to be very very sick last nigh...

I can't stop eating chocolate. It's like a weird addiction, I see the biscuit, the biscuit has to be eaten by me. So it is and oh GO...

The teen helped at Brownie camp this weekend so husband and I had the house to ourselves from late on Friday. It was a bit weird, the quietn...

I'm pretty sure this isn't the second but guess what? I've forgotten the system I set up. Normal behaviour here, it has to be sa...

There I was sitting on my phone when my hospital app alerted me to a phone appointment which was starting in 30 minutes. It was new, I knew ...

So here I am, no longer updating daily like I was. Mainly as my repetition is quite obvious when I post things, but also there's nothing...

So the world of weird has re/appeared these last two days. In my head I'm staying indoors today because I'm due a delivery from Nesp...

Seriously. This hunger is too much. Husband reckons it's steroid related, I'm not so sure. Other than right now I need a giant bag o...

I had my phone call with the diabetic doctor today. It was an interesting call - mainly as I got a lot of answers to questions I hadn't ...

Had a phone call with the Diabetic Doctor this morning to talk about lowering my Insulin I take every day.  The only reason I started Insuli...

Hands : very very dry and peeling. The good news is the peeled area has lovely soft skin.  Legs : It feels like the heat - rash - peel and i...

Went in for my April appointment today, where things are now different within the hospital. I had been given a bloods appointment but knew t...

This blog started out as somewhere to keep notes, but I think is lacking coherent content. So until my brain forgets what I'm writing ab...

Today's "uuurghhh" moment is my face swelling up. Under my eyes - I think my days of using the MooGoo eczema cream may have to...

So earlier on here I wrote " Health-wise I had a headache, a very low-grade one which was there all day. I mentioned it yesterday at th...

Here I am after another Monday at the hospital. Today was a bit different to the usual - aside from the waiting involved. We arrived at the ...